"Tough times don't last, tough people do."

Friday, May 19, 2023

Getting the first pump detached...

Removal of the pump was very quick and easy.

However, yesterday he started to feel bad. Temperature has been consistently a little high for him - he usually runs a bit low - although it hung around 99.4° yesterday/today. They start to worry if it hits 100.4°... When they took it at hospital, it was 100.2°, which is a bit of a concern.

And his mouth has started to burn again and his lips are puffy and also tender, plus low blood pressure... So, we hung around to talk to the doc, then longer to wait for the on-site pharmacy to refill all the stuff he used before for his mouth burn issues. 

We had a snack at the canteen while waiting, since we were now well past lunch. Should have made him eat more. 

Hit extra traffic because it's Friday, going straight to Trader Joe's to pick up Aloe Vera juice which they recommended might help, then did our pre-planned pick up of distilled water at Target, then waited in a ridiculously long line at Burger King to get Biff a plain cheeseburger. He insisted on coming along on the errands...

Finally got home about 4pm, and he was so wobbly it was scary getting him from the car to the house/his usual chair. Just an abrupt wobbly event! Freaked me out. But, he has now eaten (so have I), and he's not wobbly anymore. Yeesh. Adding Ensure to the bag of stuff I usually bring to all appointments, like water and such.

He's not going to take anymore blood pressure meds unless his BP spikes, but we will be monitoring his BP daily, along with his temperature. And he has several "potions" to use to help with the mouth stuff. Hoping they give him some relief.

Turned into an exhausting day, but he's enjoying not being attached to the pump - and still no nausea or diarrhea, so, all in all, he's doing okay.

My fingers are crossed the next several days won't be any tougher than yesterday and today! 😵‍💫🤗❤️❤️❤️

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